So this round is off to a strange start. I never really recovered last round. Never got back to the baseline that I expect. The best I felt was Sunday night, right before having to start up again, when I put on my wedding suit, my only suit, and took Hill out to dinner for valentines day. We share a bank account.. Maybe she took me out! Hard to know. We had a lovely time at Il Posto Accanto, a quiet little wine bar that serves food out of the kitchen of the italian restaurant next door. It’s a beautiful little menu full of well prepared bites.
I was really dreading this round because last round was so hard. I’ve been anxiously waiting to see if the worsening trend continues, or if maybe the thing has peaked and will flatten out, or start to ease off. It started out all right. The oxaliplatin didn’t hit quite as hard and fast as usual. Most times, withing 20 minutes of it starting to drip I can feel it. Hard to describe what I’m feeling exactly.. chemo brain setting in, gurgling in the stomach, general flu like symptoms, etc..
The pain that I’ve been complaining about, however, started a little earlier than it did last round, and by the time I was walking home, it had ramped up to the worst I’ve felt it. FAST. From nothing to VERY severe over the span of about an hour and a quarter. Special Ed walked me across the park and then rode his bike home while I got on the train. The pain continued to develop. Rocket ship trajectory.. just worse and worse. By the time I got home I wasn’t sure if I’d ever been in more pain. The strange thing is that it was cracking me up. I couldn’t stop laughing. Almost like the pain was so severe that I was having some sort of out of body experience.. observing the pain from outside, and laughing at the absurdity of how fast it had come. I was in a GREAT mood. Feeling no nausea whatsoever! I took a couple of oxycodone and some extra strength motrin and lay down in bed. Still laughing and having a great time. It took about 45 minutes for the stuff to kick in, but when it did, it worked. Pain gone. Vanished. The new element is the motrin. My doc had the thought that if this pain was somehow inflammation related that narcotics might not do as good a job as an anti-inflammatory. Good thinking, doc!
At around eight I peeled myself out of bed and actually cooked for the girls! The first time that I’ve managed to cook on a treatment monday. It was almost as though the pain came in swinging for the fences, and knocked every other side effect right out of the park. So when the pain was under control, nothing else was left. Hallelujah! Chicken and Gai lan with black bean sauce!
Pain started to surge again after dinner. More drugs. I slept pretty well. It’s there again this moring, but manageable. No nausea still. If the motrin horse pills continue to keep the pain under control, this could turn out to be a much easier round than last. Fingers crossed!
I’ll go in again this morning, for day two of drip drip. Day two starts with benadryl, which usually knocks me right out. A nice nap while he pushes in the erbitux and leukovorin.
I’m feeling optimistic. I’m not interested in loosing another two weeks to this treatment. Hoping like hell that this round I manage to be more productive than the last.