I went into the round with a bit of a cold, which I haven’t managed to shake (imagine..). That hasn’t really helped. But the real issue is a set of joint/body aches that have begun to set in like clock work on the thursday of a treatment week.
It’s such a confusing thing to have wednesday as I get unplugged feel so good and so freeing, and then wake up on thursday feeling as though I’ve been beaten with bats. The pain is centered around my upper spine, but radiates down my arms and can feel concentrated around the elbows, wrists. It is agonizing (please believe that I am not being dramatic). Last treatment round it was isolated to thursday, but this round has been MUCH more severe and I’m still feeling it saturday morning. Have had to take meds to sleep. My doc says it sounds like the flu. I agree! It DOES sound like the flu. A flu that I’ve caught every thursday after a round of chemo!!
(I should pause here. I give my doctor a hard time on this blog because some of the things that come out of his mouth are absurd. You should also know that we’ve known each other since I was 4. He loves me as a son, and, in fact, sometimes introduces me as his son. We swear at each other and give each other a pretty hard time. I say something flippant and he says, “you’re an asshole..” I raise my eyebrows at him.. “oh.. yeah.. poor taste.. well, you’re a dickhead!” His favorite game is to pretend that the things happening to me are in my head and not actually side effects of the poison he’s pushing into my system. “People don’t loose their hair on folfox, Ezra” “I beg your pardon!! I HAVE. TWICE!!!” He confided in me the other day, that oncologists who feel pity for their patients and back off when side effects crop up, loose patients. They die. He is a cancer survivor himself, and has been through pretty brutal treatment. It’s not that he doesn’t know..)
I am hoping that this week’s days of pain have been exacerbated by my cold, and that this isn’t a worsening trend.
I did still manage to cook dinner the last two nights.. thursday for a crowd of around 10 at my parents’ place, and last night for my good friends Liza and Darius and their awesome kids. Not all is lost. I will blunder through! I also managed to play 6 hours of pool yesterday with my good friend Jeremiah. I’ve found that the pain doesn’t change much whether I’m resting or active.. sooo, might as well do some stuff!