The most difficult side effect over the last handful of rounds has been pretty severe joint pain. It seems to radiate from the upper spine, and effects my arms.. elbows, wrists. It’s a dull but constant ache. For a moment or two, not so bad, but after 24, 36 hours it gets exhausting. Last round, it set in on the thursday following treatment and persisted through the weekend. I feel I probably mentioned it in a previous post. I had an MRI of the spine, and it revealed what I already knew. I have a couple of herniated disks in my upper spine from bouncing around on my head when I was teaching dance. They flare up now and then, but the quality of this pain is something quite different.
This round had a pretty promising start. The pain set in immediately instead of waiting until Thursday, and Monday night I didn’t manage to sleep at all. I went into the office on tuesday and got a dose of benadryl as usual to go with the erbitux, and it knocked me out beautifully. I slept soundly while getting dripped for close to three hours. I walked back through the park feeling quite a lot better. The pain had subsided and I thought maybe that was it for the week. Yesterday, though, it came back with pistolas blazing. Today I’m in a lot of pain. I got out of bed this morning, and got as far as the bathroom.. Took some oxycodone and went back to bed. The stuff puts me in blissed out daze, which beats the pain for sure, but makes me pretty useless. Finally got up and started moving around at about 11, filled an Etsy order, ate some lunch, and now the dope has worn off.. at least the part of it that does anything for the pain. I’ve just taken some more and am planning to head back to bed. I’m hoping against hope that this isn’t something that will just get worse with each round.
Despite all that, I managed to make dinner for 9 last night, and went to see Glen perform at the City Winery. It was a late show, but totally worth it (He wrote me a song and performed it, and broke my heart a little. What a thing). Also worth mentioning that this round marks the half way point! Just three more bloody months to go.
All right. I’m taking my dog, and I’m going to bed.