I’m on day three of a treatment cycle. I go in this morning and get the pump removed, and don’t have to go back for 10 days. I’m having a hard time believing that this is the pattern I’ll be looking at for the next 5 months. I’m trying to be tough about it, but it SUCKS.
It goes like this: I go in on monday morning and get oxaliplatin (this is the stuff that makes my hands go all pins and needles if I touch anything colder than room temperature.. pretty funny the first couple times, then just annoying as hell.. try and cut an onion from the fridge, and your hand goes numb. Great), then a bag of avastin, then a big syringe full of 5FU, followed by a bag of lukovorin. The whole thing took 6 hours this time. Then he sends me home with this pump (more 5FU). I go back in the next day to get another syringe of 5FU and get topped up with lukovorin. Sent home again with the pump. Then on wednesday, today, I get to go back in and have the thing removed, go home and rest.
My pump is faulty. The folks at the hotline think that the sensor is going. So every now and then an alarm goes off telling me.. “Oh god!!! there’s nothing attached to me!! there’s nothing to pump!” Meanwhile, the bloody thing can tell me exactly how much is left in the reservoir. I’d love to be able to talk to it.. “ok.. so you’re saying there’s no reservoir attached to you?” “Correct. Nothing there.” “BUT, that it has 54.3 milliliters left in it?” “You got it. Precisely.” “Not 54.2?” “Oh no.. 54.3, on the nose” “Are you stupid?” “What do you mean?” “nevermind…”
The stuff makes me headachey, nauseous, and just plain tired. Can’t really do anything, but can’t really fall asleep either. A lot of laying around being uncomfortable. I’m hoping that the recovery goes quickly this time around.. Hoping that I get a sense of what kind of pattern I’m looking at going forward. Can I be back in the shop working by friday? saturday? It’d just be nice to know what I can count on.
On a positive note, the pain from the surgery is finally under control. I didn’t take any pain killers at all yesterday, and didn’t suffer for it. What a relief. Progress!
Also, Putney is doing fine. She’s a little pissed about the lack of frisbee.. or anything fun really, but she’s being a good sport, and is pretty oblivious to any pain. Dogs are tough.
And no, I don’t keep my onions in the fridge. Only if there’s a half left over from the night before.